Leukemia & Lymphoma Society
Leukemia & Lymphoma Society
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Hope on the Horizon: How States Are Protecting Patients From Medical Debt
Nearly half of Americans have suffered from medical debt. It can block patients from important opportunities and even delay their healthcare - sometimes for years. But change is on the way: across the country, state lawmakers are listening to patients and passing groundbreaking laws that protect their residents from the most harmful effects of medical debt.
In this June 25, 2024 conversation, experts discussed this exciting movement - and how advocates can get involved. Feeling inspired? Visit www.lls.org/raiseyourvoice and we’ll let you know how to tell your lawmakers it’s time to protect patients from medical debt.
Speaking included:
•Steve Butterfield - Senior Director, State Public Policy, The Leukemia & Lymphoma Society
•Lucy Culp - Vice President, State Government Affairs, The Leukemia & Lymphoma Society
•Maanasa Kona - Assistant Research Professor, Center on Health Insurance Reforms, Georgetown University
•Noam Levey - Senior Correspondent, KFF Health News
•State Sen. Fady Qaddoura - Indiana Senate District 30
•Chi Chi Wu - Senior Attorney, National Consumer Law Center
This webinar was part of a series sponsored by Eli Lilly, with content developed by The Leukemia & Lymphoma Society.
Переглядів: 43

Відео

Myelofibrosis: Charting The Course for CareMyelofibrosis: Charting The Course for Care
Myelofibrosis: Charting The Course for Care
Переглядів 1767 днів тому
Speaker: Swati Goel, MD Associate Professor Department of Oncology and Medicine Montifiore Einstein Comprehensive Cancer Center Bronx, NY Support for this program provided by Abbie Inc.
Managing Side EffectsManaging Side Effects
Managing Side Effects
Переглядів 9811 днів тому
Join Elissa Baldwin of the LLS Patient Education team as she speaks to Jeffrey Zonder, MD of Karmanos Cancer Institute in Detroit, MI. In this episode, we discuss the side effects that blood cancer patients may experience during and after treatment. Dr. Zonder expresses the importance of open communication with the treatment team to better manage side effects. Want to see more? Visit www.LLS.or...
Understand Insurance BasicsUnderstand Insurance Basics
Understand Insurance Basics
Переглядів 33711 днів тому
In this video, Monica Fawzy Bryant, Esq. of Triage Cancer will teach you the basics of insurance and where you can purchase within the United States. Want to see more? Visit www.LLS.org/HowToVideos
Shape and Fill In EyebrowsShape and Fill In Eyebrows
Shape and Fill In Eyebrows
Переглядів 46611 днів тому
Did cancer treatment cause thinning or loss of your eyebrows? In this video, Jared Lipscomb, an AML survivor and professional makeup artist will show you how to shape and fill in your eyebrows. Want to see more? Visit www.LLS.org/HowToVideos
Childhood ALL: A Roadmap To The FutureChildhood ALL: A Roadmap To The Future
Childhood ALL: A Roadmap To The Future
Переглядів 14115 днів тому
Dr. Stephen P. Hunger, Chief, Division of Oncology, Director, Center for Childhood Cancer Research, Children's Hospital of Philadelphia, Professor, Pediatrics, University of Pennsylvania Perelman School of Medicine, Philadelphia, PA discusses advances in treatments for ALL (acute lymphoblastic leukemia) in children, Side-effect management and advocating for your child's needs with the healthcar...
Eat Healthy Using Greek YogurtEat Healthy Using Greek Yogurt
Eat Healthy Using Greek Yogurt
Переглядів 1 тис.Місяць тому
In this video, Casey Kang Head, a cancer survivor, will share the health benefits of greek yogurt and show you three easy, healthy recipes that you can make at home. Stay tuned for future recipes from Casey!
Changing Laws, Changing Lives: Thank You Blood Cancer AdvocatesChanging Laws, Changing Lives: Thank You Blood Cancer Advocates
Changing Laws, Changing Lives: Thank You Blood Cancer Advocates
Переглядів 89Місяць тому
Thank you to the thousands of blood cancer advocates who work with us every day. Your tireless efforts are making an indelible impact on the lives of patients. When you speak, lawmakers listen! From making cancer care more affordable to accelerating new cures, your voices continue to make a difference. Are you ready to raise your voice? Visit lls.org/raiseyourvoice and learn how you can join ou...
LLS is Confronting the Medical Debt Crisis: Join the MovementLLS is Confronting the Medical Debt Crisis: Join the Movement
LLS is Confronting the Medical Debt Crisis: Join the Movement
Переглядів 128Місяць тому
Nearly half of Americans struggle with medical debt, including blood cancer patients and survivors whose stories are featured in this video. Medical debt affects their credit, forces them to delay healthcare, and prevents them from moving forward with their lives. LLS is urging lawmakers at all levels of government to help protect patients from the burden of medical debt. Join the movement at w...
CAR T-Cell Therapy and the Patient ExperienceCAR T-Cell Therapy and the Patient Experience
CAR T-Cell Therapy and the Patient Experience
Переглядів 1,4 тис.Місяць тому
Join Elissa Baldwin of the LLS Patient Education team as she speaks to Olaleken Oluwole, MBBS, MD and Brittney Baer, BSN, RN, of Vanderbilt University Medical Center in Nashville, TN about CAR T-cell therapy. In this episode we discuss this groundbreaking therapy as well as after care for patients. Supported by Bristol Myers Squibb; Genentech, Inc. & Biogen; Johnson & Johnson & Legend Biotech; ...
LLS + Advocates: Working Together to Make Laws That Work for PatientsLLS + Advocates: Working Together to Make Laws That Work for Patients
LLS + Advocates: Working Together to Make Laws That Work for Patients
Переглядів 6292 місяці тому
Blood cancer advocates across the country are sharing their stories and speaking up about policy issues that matter to patients and survivors. Join our team at www.lls.org/raiseyourvoice. We’ll send you simple ways to communicate with elected officials. Your voice matters - and it could be the one that sways a decision-maker to do the right thing.
LLS 2024 Advocacy Town HallLLS 2024 Advocacy Town Hall
LLS 2024 Advocacy Town Hall
Переглядів 1852 місяці тому
Cancer treatment is far too expensive. And the costs are highly unpredictable. At our 2024 LLS Advocacy Town we discussed how we can work together in 2024 to ensure that blood cancer patients are able to get the lifesaving treatment they need at the moment they need it-without compromising their financial futures. Want to become an advocate? Join us - and be a voice for patients - by texting LL...
GENOM Perspective Podcast - MyelomaGENOM Perspective Podcast - Myeloma
GENOM Perspective Podcast - Myeloma
Переглядів 713 місяці тому
GENOM Perspective Podcast - MDSGENOM Perspective Podcast - MDS
GENOM Perspective Podcast - MDS
Переглядів 443 місяці тому
GENOM Perspective Podcast - ALLGENOM Perspective Podcast - ALL
GENOM Perspective Podcast - ALL
Переглядів 713 місяці тому

КОМЕНТАРІ

  • @BiotechnologyReviews
    @BiotechnologyReviews День тому

    CAR T-cell therapy offers hope where traditional treatments failed. The future of oncology is here! #CancerBreakthrough #CAR-T ua-cam.com/video/8o70F5UrJ3k/v-deo.htmlsi=GSlr06vjHsu071To

  • @bettyroggenkamp413
    @bettyroggenkamp413 5 днів тому

    LLS and Monica...this 3:36 long education is so very valuable for people to have a grasp on what they would have to pay, beyond premiums, in a year's time when consuming healthcare. Short, video, and precise. I will be utilizing this in patient facing resources going forward. For those diagnosed with cancer, especially young people who may have decades to live, knowing how deductibles/co-pays/co-insurance = max out-of-pocket is critical for life. Low premiums are attractive, but can be financially devastating is one actually needs to USE their health insurance. Bravo!

  • @rishabhlp
    @rishabhlp 6 днів тому

    Can someone from india participate in these trials ?

  • @pi.r.squared1836
    @pi.r.squared1836 8 днів тому

    I would have greatly benefited if this service had been available when I was finished with my Bone Marrow treatment 32 years ago. I will never forget how grueling all the scans and test to see if I was still in remission.Thank you Dr. Siegel for this wonderful new service available for survivors that is now through Kaiser.

  • @user-nb6bt9sq4g
    @user-nb6bt9sq4g 9 днів тому

    Very nice

  • @user-os7nj1ms1q
    @user-os7nj1ms1q 13 днів тому

    I am also suffering from CML

  • @minismokeshop
    @minismokeshop 15 днів тому

    nothing explained in this video

  • @SusiGlover-yg5pm
    @SusiGlover-yg5pm 16 днів тому

    Fenbendazole!

  • @user-gt2vz4gs3v
    @user-gt2vz4gs3v 16 днів тому

    Loved it so good thanks

  • @pattyrooney1323
    @pattyrooney1323 19 днів тому

    Thank you for sharing this!

  • @akshaysingh454
    @akshaysingh454 26 днів тому

    My mom is diagonal with APML she is going through the ATRA + arsenic trioxide her platelets are not stable and fluctuating every day, she is on constant dosage of donor platelets does anyone have seen similar thing? is this concerning?

  • @wendyeesue
    @wendyeesue Місяць тому

    Ive got different symptoms, Top of my head very sensitive when i wash my hair, never there for years now starting to bother me. My upper right side of my gums is sore to the touch when I brush my teeth, Dentist did not know what it is. It is my bone in my gums..My left hand index finger knuckle burning like a lit match inside. Im awakened in the middle of the night with a burning sensation, again, like a lit match running accross inside my leg..There is a red bump at the spot where the burning sensation stopped. Ive got red dots all over my legs which recently was told by the Doctor its caused from Low Platelets...I start a Bone Marrow Biopsy June 4th 2024. I believe this all start 1 year ago when I accidently got carbon monoxide inside me...

  • @SRCChat
    @SRCChat Місяць тому

    I had gotten 2 Stem Cell transplants in 2020. I was on a chemo maintenance program and my multiple myeloma was in remission for 18 months. I had taken 2 covid vaccines and one booster. In August 2022, I took a second booster. In a month, my MM came back like it had never been treated. Coincidence? I won't take another covid vaccine or booster no matter what. All were Pfizer.

  • @laradamico1991
    @laradamico1991 Місяць тому

    My husband had car t for lymphoma B cell. He had to stay in the hospital for 41 days. Thought it worked. Scans were good for four months, then came back with a vengeance. He was dead 8 months after car t. It was a grueling experience for such a short term result.

  • @JonathanLopez-um3ql
    @JonathanLopez-um3ql Місяць тому

    Como dejo a mi pareja embarazada que tengo más de dos años y nada

  • @JonathanLopez-um3ql
    @JonathanLopez-um3ql Місяць тому

    Como dejo a mi pareja embarazada que tengo más de dos años y nada

  • @JonathanLopez-um3ql
    @JonathanLopez-um3ql Місяць тому

    Como algo para poder dejar ami pareja embarazada que tengo más de dos años intentado y nada

  • @vickybrowning2531
    @vickybrowning2531 Місяць тому

    My daughter was diagnosed with leuikemia in2018 and passed away in 2020. Broke my heart and does. everyday. They need to come up with a cure. It is devastating. I would love to help anyway I Can.

  • @ernajacob1417
    @ernajacob1417 Місяць тому

    My son Michael has LLC cancer was diagnosed 2 years ago he is doing chemo and infusion when needed it is hard to watch your love one fighting for his life I pray someday they find a cure

  • @nikimuhlfeld7202
    @nikimuhlfeld7202 Місяць тому

    wie hässlich es in den USA ist,dass man scher krank um Hilfen betteln gehen muss, weil man die Behandlung nicht bezahlen kann. und dann lese ich hier:Gott segne dich?? Was hat Goitt damit zu tun, dass die GESELLSCHADFT DER USA Menschen die krank sind ,in Stich lässt?! Wir haben hier in Deutschland eine echte!!Krankenversicherung, ale bezahlen und jeder kann medizinisch gut versorgt werden. PFUI! USA!!!

  • @annlyder8657
    @annlyder8657 Місяць тому

    My best buddy died a few weeks ago. She was 67 years old. She was diagnosed with leukemia. Her death certificate stated leukemia followed by a question mark. She had over 90 blood transfusions and i wonder if this contributed to her death as they werent screened for covid T cells. She had been told that her leukemia was manageable but the white blood cells were wiped out in less than a day after each blood transfusion.

  • @mikewagner8748
    @mikewagner8748 Місяць тому

    AMEN, AMEN, AMEN

  • @mikewagner8748
    @mikewagner8748 Місяць тому

    Praise to you Lord

  • @1968fredc
    @1968fredc Місяць тому

    Is anyone here able to share the experience regarding the blood cells (WBC, RBC, PLT) changes after arsenic infusion? Thank you.

    • @akshaysingh454
      @akshaysingh454 26 днів тому

      My mom is diagonal with APML she is going through the ATRA + arsenic trioxide her platelets are not stable and fluctuating every day, she is on constant dosage of donor platelets does anyone have seen similar thing? is this concerning?

  • @naenaew.7442
    @naenaew.7442 Місяць тому

    Blessings and Peace To You All

  • @1968fredc
    @1968fredc Місяць тому

    Here in Taiwan, I was diagnosed in January this year, started taking ATRA until now, and have 4 cycles of Arsenic infusion (7 days per cycle, 2 cycles in the first month, and 3rd and 4th cycles in the following 2 months). I got the blood remission in the first month and then had molecule remission last month. Will have another 2 cycles of Arsenic infusion in May and June for consolidation therapy. Currently, I am fine and getting better. Hope everyone is well, too. I wonder if anyone could share the maintenance therapy experience here, thank you all. Let's pray to conquer it together.

    • @danielnganga4052
      @danielnganga4052 Місяць тому

      How can we be in touch, my bro going through exactly the same. One week into ATRA and arsenic infusion

  • @webekings
    @webekings Місяць тому

    My father had fought large B cell hyper aggressive lymphoma and had the chemo and resorted to bone marrow transplant. After getting his 2nd or 3rd vaccine that he was instructed by his oncologist to get, he very quickly came out of remission. We didnt know until he stopped breathing one morning. He had been coughing (common for him annual cough due to allergies) for a month. I gave him mouth to mouth and resuscitated him and firemen took over as i was shaking too hard to continue. Doctors said his cancer was back. PleurX drain put in as his pleural fluid was gathering in the lungs “cavity” and pressed on his heart. He got 2 interrupted chemo treatments before being handed off to OHC to get a new treatment thats MRNA based! Now. Before his mrna tx, the doctors congratulated him on being in remission again! So… wtf… he got the tx anyway. Doctors refused vitamin d (gave vit d2 which is the worst) and wouldnt give him the activated version. No one is answering my questions. I myself now have COPD according to doctors even though i havent smoked, after getting the Moderna shot for my medical job at the time with the VA. Doctors accused me of shooting up when i showed them my open sores on my skin that wont heal, my lungs had so much fluid in them my O2 dropped to 83 at rest on a good day of breathing. I couldnt sleep for 3 month due to violent coughing. Doctor gave me a pill and hospital gave me a breathing treatment that actually rid my mucus FINALLY… i looked up the pills he gave me… Allegra in prescript form. Previously when i initially went for my breathing, shortly after i got covid from my parents (yes. Same parent that i spoke of that magically had and didnt have cancer), i called the doc and they told me to sleep it off! Scared, i drove there and spoke to them. They asked when i got it. I said maybe 2-3 days ago and they refused the tx available (names escaping me) if you took within 2 days. Later asked doctor why i was refused it… what negative effects would i have been subject to and he said there wasnt any… He soon called in another doctor (im guessing as a witness after asking him about his current knowledge on long covid and or vaccine harm…

  • @1234Eleanor
    @1234Eleanor Місяць тому

    Tell us what we can do now to help.

    • @amandakaras356
      @amandakaras356 Місяць тому

      Click the link in the description above.

  • @ThatOneGuy__unsanenugs
    @ThatOneGuy__unsanenugs 2 місяці тому

    They make it sound like theres lots of treatment options when in reality theres 5. Imatinib, dasatinib, bosutinib, nilotinib, and ponatinib. After that youre screwed. I'm on my 4th medication 2 years after diagnosis. I'm almost out of options.

  • @omyjonhgod
    @omyjonhgod 2 місяці тому

    Is beating goku in my blood too?

  • @curtpiazza1688
    @curtpiazza1688 2 місяці тому

    Thanx!

  • @tiinaheinikangas3936
    @tiinaheinikangas3936 2 місяці тому

    Thank you for this video! I also had Hodgkin's disease year 2000 as a 23 year old. Got cured, but now I have PTSD and having therapy. 🙏

  • @davidrosenman1889
    @davidrosenman1889 2 місяці тому

    Extremely moving so far. When he started talking about his wife, I started to cry.

  • @judithbell69
    @judithbell69 3 місяці тому

    I was 75 when I was diagnosed. I turned 81 this past December. I feel very blessed to be in the study..Magical pill. No chemo Wonderful Doctors and Nurses and persistent intervention of my children

    • @binkle1757
      @binkle1757 2 місяці тому

      That’s wonderful!! Thank you for participating and helping future patients. I was diagnosed in 2014, and under went the standard chemo and then transplant. Not fun!! The idea of a pill is amazing.❤❤❤

    • @rishabhlp
      @rishabhlp 6 днів тому

      Hi Judith, anyway I can connect with you? I need some help / guidance.

  • @arifkhan-sy1it
    @arifkhan-sy1it 3 місяці тому

    I can send you my medical reports for a specialist hematologist comments. Can someone share the resource links

  • @U2FanSanFran
    @U2FanSanFran 3 місяці тому

    I just got diagnosed with Chronic Myeloid Leukemia and prescribed Sprycel. I start taking it this week.

  • @josephchroniger4281
    @josephchroniger4281 3 місяці тому

    My favorite person in the world! Love you short stuff

  • @user-ss2if4ot9r
    @user-ss2if4ot9r 3 місяці тому

    Thank you so much for giving. These are such beautiful people.❤❤❤❤❤❤ angels on earth.

  • @Stevieboy481
    @Stevieboy481 4 місяці тому

    I was diagnosed with in 1975 when I was 15.im now 64 and have never had a problem.i had been cristalin and radiation

  • @sipelilemagwada1382
    @sipelilemagwada1382 4 місяці тому

    Using machine deep lPersonalize medicine seams to be great idea

  • @user-rh9jx8jb6d
    @user-rh9jx8jb6d 4 місяці тому

    E

  • @TheSilverlady1980
    @TheSilverlady1980 4 місяці тому

    Was non Hodgkin’s lymphoma of eye/brain. Had many surgeries radiation induced severe nerve damage to ganglion pond, all teeth turned to putty, eyes cataracts L retina bled at lens implant. Daily electrocutions from L ganglion that brain surgery revealed to be so melted indecernable trigeminal nerves that resembled chewed gob of bubble gum nothing could be done. High price to pay. I am treated like a drug addict fir requiring powerful safe prescribed stable pain control. Have recent 1.3 neutagenia indicating possible marrow involvement. I had Covid it was quite the the battle. I am jab free and will remain so! But wether jab or nit looks like cancer remissions are ceseptable to spike jab or the spike virus it’s self. May Jesus Kingdom come! Scripture says unless those days are cut short (by the Kingdom coming) no flesh would be saved. Satan contaminated the human race with hybrid is and God had to cleanse the earth and the Kingdom has a battle with Satan coming up. Who do you think will win?

  • @wosuibian1
    @wosuibian1 4 місяці тому

    That voice is so soothing

  • @garythompson5953
    @garythompson5953 4 місяці тому

    I will never forget "little man." I made a promise Kethan. We will slay the Jabberwocky.

  • @Xtsy_1989
    @Xtsy_1989 4 місяці тому

    The face of the company. Fucking Proud of Roman Reigns, Haters can hate